Friday, January 14, 2011

Waiting Game

Tuesday I had a 2nd bilateral pudendal block at the alcock's canal level (that's basically near the sit bones but they go in through the buttocks). I went ahead and told them to use steroid so they used 20mg of Kenalog in each side. This time I was numb from almost my pubic bone up through the perineum and to about the middle of my butt. I was also numb down most of my left leg.  Last time I wasn't numb through my perineum which concerned me so this block actually was probably in the right spot.  It felt really strange being numb in that area though and while it took away most of my pain for a several hours I was left with strange sensations internally and some pain. My guess is I was my pain was coming from where the needle went in internally. 

Wednesday, I went to work for about 5 hours, but my sacral area was really hurting.  By the time I got home I was pretty flared up.  Then Thursday I had a lot of vulvar burning and I still do today.  So I think the steriods have kicked in.  It's just a waiting game now to see if they will help any. Usually within 7-10 days you know if they are going to help at all.  It's not uncommon to flare after a steriod injection so I am praying that's what all this is. I feel overall fatigue and have more burning in my feet like I did after that S1 injection I had in August with steriods. I think I am just a person who doesn't tolerate steriods well. Or myabe this is jsut my "fibromyalgia"/myofasial pain syndrome flaring from the trauma of the injection.

I've been pretty down the last couple days. I can't believe sometimes that I really have pudendal neuralgia and maybe even fibromyalgia. I say all the time to my husband, "what happened to me"? I just don't understand it. I know God is working for my good, but how? How is being unable to hardly care for my family, unable to be involvoved in ministry, unable to hardly work, unable to leave my house a lot of days good? Hopefully one day I will be able to see more specifically how pudendal neuralgia is for my good, but for now I just have to trust that God is who He says He is.

I don't even know what the next step is. I have made an appointment with a pudendal neuralgia specialist for August (that was the first available), but sometimes I wonder if this is it and maybe I just need to try to live with this condition the best I can in this momentary life. There is the option of surgery if the specialst thinks my nerve is really entrapped, but there is no way to know for sure and the surgery outcomes are not that great.  I have a few other meds I want to try first so this gives me 7 months to try other things (no more injections unless there is a miracle in the next week), pray for guidence, and research more about surgery.  So until further notice....keep prayin! :)

1 comment:

  1. Hannah,

    I really hope your flare calms down soon. I flared almost immediately after the marcaine wore off on my nerve block. That is, when I had a marcaine plus depo medrol (steriod) block. I am praying for you. I call out ALL our names at the altar... the altar right now in my spirit as I am unable to attend church due to the pain. But, I did make it one week ago. It was so hard. I called out every name I could think of. God bless you as you continue your journey towards health and getting the word out on PNE. If you like gospel, go to my blog and click on some videos. They are very uplifting!! (((hugs)))